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Intouch : In Touch Spring 2014
IN TOUCH SPRING 2014 7 NEWS 2014 ANNUAL GENERAL MEETING OF ALZHEIMER'S AUSTRALIA NSW INC All members and supporters are invited to attend the AlzNSW Annual General Meeting. Date: Thursday 27 November 2014 Time: 2.30pm Guest speaker: Malcolm Schyvens, Deputy President and Division Head -- Guardianship Division of the NSW Civil and Administrative Tribunal. Where: Vincent Fairfax Family Resource Centre, Macquarie Hospital Campus, 120 Cox's Road, North Ryde LIVING WITH DEMENTIA IN RETIREMENT VILLAGES People with diagnoses of dementia, and their carers who live (or have lived) in a retirement village are invited to participate in an AlzNSW and University of NSW research project. The aim of the research is to examine how well people with dementia are supported through the provision of community care and village services, and through informal support from other members of the village community. This research project will address the gaps in knowledge about the experience of retirement village residents with dementia in Australia. The fndings and recommendations will assist retirement village operators and community care providers to respond to the needs of village residents with dementia. You can help us by participating in an interview about your experience. During the interview we will discuss how supported you feel in your retirement village community, what is working well to support you and what needs improving. For more information please contact AlzNSW Senior Research and Policy Offcer Kylie Miskovski. T: (02) 8875 4641 E: kylie.miskovski@alzheimers. org.au SPOTLIGHT SHINES ON THE POWER OF STORYTELLING The 'power of storytelling' was the theme for Marie Williams' opening presentation at the 'Spotlight on Dementia' forum held at Ryde Eastwood Leagues Club on 29 May 2014. Marie, author of the beautifully written memoir Green Vanilla Tea, spoke movingly of her personal experiences caring for her husband Dominic, who was diagnosed with frontotemporal dementia and Motor Neurone Disease at the age of 44. Never intending that it would ever be published, Marie began writing the book for her sons Michael and Nick "to engage them in a collaborative act of storytelling that we would do together" and to help them put Dominic's diagnosis into perspective. Associate Professor Sharon Naismith, from the University of Sydney, delivered an information- packed presentation on modifable risk factors in her talk on 'Healthy Brain Ageing' which included the latest research on the benefts of regular exercise and sleep, healthy eating and cognitive stimulation. The day-long forum was opened by AlzNSW CEO The Hon. John Watkins, who provided a dementia update and spoke candidly about his own experiences of dementia. Other topics addressed at the forum included: • an update on the new Younger Onset Dementia Key Worker Program from Alzheimer's Australia NSW Team Leader Marie Gorman • a presentation on using Alzheimer’s Australia's new planning ahead website Start2Talk by its developer Chris Shanley • a presentation on Reducing Stigma in the Community from Michelle Basic, Educator, Alzheimer's Australia NSW • a fascinating talk on Australia’s First Peoples' Perspective on Dementia by Susan Moylan-Coombs, Australia's First Peoples Wellness Consultant with Community Care Northern Beaches. A lunchtime performance by Eddie's Entertainers, a group of 20 teenagers from St Edmunds, a year 7-12 co- educational high school for students with a wide range of disabilities, was also an exhilarating and emotional highlight of the day. to ask the experts questions in a panel discussion which saw local health and legal practitioners joined by carers Rhondda Purtell and Helen Hasan. The Start2Talk event was one strategy the working group developed to improve the opportunities for people who have a diagnosis of dementia to discuss and document their wishes when it comes to support as the disease progresses. Promotion of the website to local GPs is underway through Illawarra Shoalhaven Medicare Local. Training for community- based service providers about starting conversations around future decision making is planned for later this year. Author Marie Williams signing copies of her book Green Vanilla Tea in the morning tea break at the 'Spotlight on Dementia' forum.
In Touch Summer 2014
In Touch Winter 2014