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Intouch : In Touch Winter 2012
6 IN TOUCH WINTER 2012 OBITUARY JOHN CRAIG OAM We note with sadness the passing of John Craig OAM. John was an active supporter of AlzNSW since his presidency with Sydney Rotary helped raise $210,000 towards building a Family Resource Centre in North Ryde. In 1993 John became a member of the Board of Directors and remained an active member until 2004, holding the positions of President and Vice President. He also chaired many committees. John also negotiated funds for an innovative project to support people in the early stages of dementia, which has become the national Living with Memory Loss Program, funded by the Federal Government. AlzNSW CEO The Hon. John Watkins said John was a wonderful man who had been a great supporter of Alzheimer's Australia for many years. “I frst met John 15 years ago when I was the local MP, and was immediately struck by his compassion, decency and passionate support for people living with dementia and their carers, " John said. "That never wavered. His recent work with the AD-HOC group showed how caring and practical he was. "That wonderful group, with its marvellous volunteers, provides a unique caring opportunity. "He will be sadly missed. " NEWS NEW FILMS ON YOUTUBE Khmer-speaking monk Bo Khoeub explains that dementia is not a normal part of ageing, a mental health disorder or karma in the new DVD It's not a disgrace, it's dementia. VOLUNTEERS AWARDED AlzNSW congratulates 2012 Seniors Week Achievement Awards recipients Janet Godsell and Lois Allanson. "This is a wonderful recognition of the dedication, compassion and care both women have shown for people with dementia, their families and carers, and we are proud to count them among our team, " AlzNSW CEO The Hon. John Watkins said. Diversional therapist Janet Godsell has worked with people with dementia for more than 20 years and leads one of the longest running carer support groups for AlzNSW. Singer and pianist Lois Allanson is a dedicated volunteer. She runs the Percy Street Singers group at AlzNSW's Hunter Dementia and Memory Resource Centre in Hamilton. Fifty-nine recipients in six categories were announced in March. FOCUS GROUPS AlzNSW has held focus groups throughout the state to research transitions into residential aged care for people with dementia, particularly people's expectations and experiences. "We regularly hear from our members that moving into residential aged care is their most stressful and upsetting time. " says Brendan Moore, General Manager of Policy, Research and Information with AlzNSW. The focus groups are part of a wider research project that will help AlzNSW advocate for better services, improve the practices of aged care workers and provide recommendations to the government about improving the experiences of people in the transition period. Focus group meetings have been held in Dubbo, Tweed Heads, Newcastle and Bankstown. Two short flms encouraging acceptance of dementia as a medical condition in Culturally and Linguistically Diverse (CaLD) communities are now on YouTube, and another is in production. Personal accounts of carers' experiences in their own languages, along with opinions of community leaders and health professionals, address myths about dementia and the importance of seeking local support. "When I was little I used to call my Grandpa a lion, ” Anthony Yanghoubpour says in the flm for Assyrian communities. "I still do. " Speaking about the project, Anthony says: "It's been a privilege to have had the opportunity to honour my grandfather and encourage other young people not to be ashamed if this disease affects their family. " Carer Sarah Odisho hopes that more people will be able to recognise the signs of dementia and get their loved ones the help they need as soon as possible. "If the community can watch this DVD and understand that dementia is an illness like any other, then some good will come out of what has happened to my mum, " she says. The language-specifc short flms for Croatian and Assyrian communities are approximately 15 minutes in length with English subtitles, and have already attracted domestic and international audiences. The Cambodian version is being developed and will be available soon. The flms were produced in partnership with Why Documentaries and the Multicultural Communities Council of the Illawarra, with thanks to the Commonwealth Department of Health and Ageing, and the NSW Department of Family and Community Services. Watch online or contact AlzNSW Library and Information Services for a copy. W: www.youtube.com/user/ AlzheimersAustralia E: firstname.lastname@example.org
In Touch Autumn 2012
In Touch Autumn 2013