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Intouch : In Touch Winter 2012
IN TOUCH WINTER 2012 9 ST GEORGE AND SUTHERLAND YOD Focus Groups have been held across the St George Sutherland region. A Younger Onset Dementia Working Group, an initiative that arose from the YOD Planning Meeting of Service Providers held in January 2012, will be chaired by the St George Sutherland Dementia Advisory Service. The St George Sutherland Region also hosted a Younger Onset Dementia Planning Ahead Forum on 22 May, which was identifed as one of the priority needs by the local focus groups. COFFS HARBOUR PROJECTS A range of YOD projects is underway in the mid-north coast and Coffs Harbour region. Earlier this year, AlzNSW commenced a range of activities and outings for both people with YOD and their carers including cultural events, social outings, carers' groups, shared meals and physical activities. YOUNGER ONSET DEMENTIA AND ME Does your mum or dad have younger onset dementia? Would you like to talk to other young people in similar situations? The AlzNSW blog Younger Onset Dementia and ME is a place for young people to connect with others and to access helpful information. Visit the website to subscribe. W: youngeronsetdementiaandme. blogspot.com.au PORT MACQUARIE MEETING The Port Macquarie Dementia and Memory Community Centre held its frst meeting for people with younger onset dementia and their carers in the Port Macquarie and Kempsey shires on 4 April, with almost 30 couples attending. Pending a successful funding grant, the centre is also hoping to host a YOD Camp Retreat in the area. advocating personalised support packages to improve the quality of life of people with YOD. Additionally, AlzNSW is considering ways to better tailor its own information, support and education services towards YOD. Already, AlzNSW has set up YOD specifc community programs, support groups for the children of those affected by the condition, and a library blog where people can access information on YOD. The Living with Memory Loss program has also been customised for people living with YOD. On top of this, AlzNSW believes there needs to be more education within the medical professions regarding YOD, as many people with YOD receive a delayed diagnosis due to symptoms being attributed to other conditions such as anxiety, stress, depression or, in women, menopause. YOD EVENTS
In Touch Autumn 2012
In Touch Autumn 2013