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Intouch : In Touch Winter 2014
IN TOUCH WINTER 2014 7 NEWS DEMENTIA AWARENESS MONTH Preparations are underway for a fantastic Dementia Awareness Month this September. Last year, Dementia Awareness Week was bursting at the seams with awareness-raising events and activities across Australia. So, to ﬁt everything in this year, it has grown to a full month, with a focus on creating dementia-friendly communities and initiatives to improve inclusiveness for people living with dementia, their carers, family and friends. Activities and events will include a visit by international guest speaker Steve Milton, one of three directors of Innovations in Dementia, a UK not-for-proﬁt organisation. The organisation has successfully inﬂuenced the British government to create dementia-friendly communities. Steve will be visiting Kiama, Sydney and Port Macquarie in NSW as part of a national tour during Dementia Awareness Month. AlzNSW will keep you informed of all the events and activities planned for Dementia Awareness Month in the next edition of In Touch. We will also be updating the website so check www.ﬁghtdementia.org.au for events and activities near you. THANK YOU FOR PARTICIPATING The AlzNSW research team wishes to thank all the people with dementia, carers and service providers who recently participated in the 'Meeting the Transport Needs of People with Dementia' project. The team is analysing all of your feedback and in the process of contacting those who have won gift vouchers. The results will be available once they have been written up. Thank you for your generosity. Your input is greatly valued. ILLAWARRA DEMENTIA FORUM The Illawarra will host a 'Living Positively with Dementia' forum this July at The Builders Club, Church Street, Wollongong on 30 July, from 10.15am to 2pm. For more information or to attend, please contact Michelle Brownlee T: 02 8875 4663 E: Michelle. Brownlee@alzheimers.org.au The new national Younger Onset Dementia Key Worker program has been making its mark across NSW, as the team prepares to celebrate the program’s ﬁrst anniversary on 1 July. Families and supporters of people living with dementia have become familiar with the new program and what it has to offer, which includes support and care for younger people diagnosed with dementia, their carers and families, and assistance for people navigating complex health and community service systems. Since the program began NSW has received more than 370 referrals, with more than 300 currently being managed by key workers. Many of the referrals have come via the National Dementia Helpline. Those who have difﬁculty referring by phone can email: NSW.ReferralYODKW@ alzheimers.org.au Feedback has been positive about the ﬂexibility of the program with different methods of engagement such as phone, email and Skype or face-to-face meetings. Consumers report feeling listened to and acknowledged, with Key Workers recognising the wishes of the individual, and providing empowerment through advocacy and education. The program also raises awareness of the incidence of Younger Onset Dementia. To contact the Younger Onset Dementia Key Worker program in NSW, please call the National Dementia Helpline on: T: 1800 100 500 THE NEW NATIONAL YOUNGER-ONSET DEMENTIA KEY WORKER PROGRAM DEMENTIA ADVOCATES One reason for AlzNSW's success in its advocacy for people with dementia, their carers and families in recent years has been our ability to tell the stories of our members, with their help. Members of the Dementia Advocates program help us to spread the word by sharing their story in the media, on social media, as part of a fundraising appeal, or by participating in our research projects. If you would like to ﬁnd out more about becoming involved, please contact Jo-Ann Brown: T: 02 8875 4636 E: Jo-Ann.Brown@alzheimers.org.au HARMONY DAY A morning tea to celebrate Harmony Day was held by the Far North Coast Multicultural Working Party at the Murwillumbah Community Centre on 19 March. A Your Brain Matters presentation from AlzNSW highlighted the importance of brain health at any age, and the morning ended with cake and a rousing chorus of We are Australian. Harmony Day is celebrated annually as a day of cultural respect for everyone who calls Australia home. The central message of the day is that 'everyone belongs'. AlzNSW was delighted to have Conjoint Professor in the School of Psychiatry at the University of NSW, Dr Brian Draper, for the Dementia Care in Hospitals Symposium in Randwick, Sydney, in April. Dr Draper was joined at the symposium by a number of high- proﬁle researchers in dementia to discuss the latest Australian research on dementia care in hospitals, including the latest ﬁndings on falls, delirium and interventions to improve quality care. Alzheimer's Australia National President Ita Buttrose AO OBE (pictured, above-right) chaired the panel discussion on strategies to improve dementia care, based on the current research. DEMENTIA CARE IN HOSPITALS
In Touch Spring 2014
In Touch Autumn 2014